International day of rare diseases will give a voice to the orphans of the medicine the place was extraordinary, and the fear is only initially: on the international day of rare chronic diseases 2011 over 20 self-help groups in Essen in the middle of the largest shopping center of the city had posted themselves. The online health magazine reported this rheinruhrmed.de. The message of the Group was also clear: they wanted to give a voice to the orphans of the medicine and get them from the pet-free zone in the middle of life. Sufferers of a rare disease often have a years of ordeal behind him. Many doctors are at a loss because the diseases are too little explored. And so bad it may listen to: for the pharmaceutical industry this commitment not worth simply. With currently over 4 million people with a rare chronic disease live alone in Germany, in Europe, the number is estimated at almost 20 million.
One speaks of a rare disease, if less than 40,000 people have been affected; in You know Europe over 6000 rare diseases. Sometimes there are only a handful of people or individuals in Europe, who have to live with one of these rare diseases. The tragic: Medicines are often scarce in these cases or missing entirely, because the pharmaceutical industry explored mostly diseases where foreseeable due to the number of cases also corresponding sales are expected.